February 24, 2010

Tenley is still on the nasal oxygen but did get switched to the CPAP for a few hours on Monday evening. She's still trying to build up her strength so it's likely she will be alternating between the CPAP and the nasal a few more times. Today was the first time someone other than Mommy or Daddy got to hold her...Grandma Lewis was at the right place at the right time and got to hold her grand daughter for roughly 40 minutes until Becky could finish "making food" for the little ones. Mommy also got to learn and practice some massage techniques on Tenley today during her Physical Therapy session. Massage is essential for getting them familiar and comfortable with moving their limbs around. When you turn the lights down, Tenley will open her eyes nice and wide and stare right at you with her big, pretty eyes. She is up to 23CCs of milk every three hours.

Will finally got to be held by his Daddy again...it had been awhile! ... and it went really well. Yesterday, however, when Mommy held him he flat-lined (which was very scary) and the nurse rushed in to snap him out of it. We aren't sure what caused it...maybe he was just laying on the wires the wrong way or something because he calmed down and has been fine ever since. Needless to say though, Mom was hesitant to hold him again after that for the day. He is now up to 24CCs of milk (his full feed) so he is off the TPN. They switched his Phenobar to a liquid as well so now he's only on one IV for the anti-biotic. Next week will be busy again for him, another ultrasound, EEG, and spinal tap are planned so he is taking full advantage of his sleeping opportunities for now.