June 10, 2018

There are often times when the questions just do not have answers - today was one of those days. At approximately noon today, Tenley experienced what we are guessing at this point to be a 30 second seizure. Afterwards, she was justifiably confused and scared but did not seem to suffer any long-term ill effects. Luckily Mommy was there during the seizure and Daddy was able to take her to Frederick Memorial Hospital afterwards. She was released later in the afternoon, and there is still a lot of uncertainty around what caused the seizure. She’ll be seeing her doctors in the days ahead to try to get a better grasp of what, exactly, happened.

While this was very difficult on the entire family, Tenley did her best to keep everyone’s spirits up, as shown in this video. We’ll hopefully get more information in the days ahead. In the meantime, please keep Tenley and the entire family in your thoughts & prayers.

June 8, 2018

He's Home!!!!

Will started his Rhizotomy surgery adventure bright and early Tuesday, May 1st. Today marks the completion of a giant milestone. Along the way, Will made us all look foolish to ever worry about anything he does. The after-therapy will still continue, but he has definitely made it through the toughest part of the adventure. He's a trooper. He's determined. He's home. 

A bit of back story here...if you don't know Will, he loves cars. Love isn't even strong enough of a word. Lately, Tesla's are his passion. So, in honor of all his hard work, Mommy and Daddy surprised him - they rented a Tesla and picked him up at the hospital. Here's that happening:

And some more pictures from the events today:

Bye therapy puppy! Hello Tesla!

This is amazing!

Thank you, Mom and Dad!!

 

I'm going to push all the buttons! What do they all do?

Tenley, I'm so happy - I'm tearing up!!

I missed you so much, Tenley

Welcome home, Will

He picks up right where he left off.

June 3, 2018

If you remember how Will went up and down stairs prior to his surgery, these two videos will absolutely shock you. If you don't remember, he would take them one step at a time; he would hold on tightly to the railing and put both feet on the step, one foot at a time, before going to the next step. This progress is just heartwarming...and you can see at the end of the second video just how happy Will is with the results, as well.

And now for some photos...

Physical Therapy fun

More Physical Therapy fun

Neighbors come for a visit

May 28, 2018

When a boy gets to see his dog

Always good to see Sis

Pulse treatment

 

Scar from surgery

May 26, 2018

The Dawgs ice hockey team just sent Will a giant care package full of Max Domi (Type I diabetes NHL Arizona Coyotes Hockey player) and Orioles gear along with a cool car coloring book (I watched him color in the Honda Odyssey and read every single vehicle listed in the book...pretty sure he liked it!) The signed Domi gear...well, Will may hate me for posting this publicly later in his life, but for now, how could I resist.

Celebratory dance for all the garb

First up to color - Honda Odyssey

Puzzle Time - Thanks Mama and Papa Petranka

May 23, 2018

Will is coming along amazingly well in his Occupational and Physical Therapy sessions at Mt. Washington. He's not sleeping so well at night and extremely busy during the day so he doesn't get a chance to nap either. The visitors, cards and gifts have been overwhelming...thank you EVERYONE for making his hospital stay more bearable. He's definitely ready to be home but he still continues to work hard.

So many photos / videos to choose from during the past week. I'll start with a video:

And now I'll add a few photos from today and his first time seeing Flurry since he left for surgery on 5/1 (it was quite an emotional reunion for Will - he was so happy to see Flurry, he broke-down in tears of joy).

May 13, 2018

All - I have to take a bit of respite from all things electronic and reality-based. Purple J and I will be off to Costa Rica early in the morning without any laptops...only cell phones for emergencies. I'll be back on the 22nd or 23rd with a post. In the meantime, enjoy these recent family pics. I can't wait to see the progress upon our return! Keep it up, Will!