March 21, 2010

Ok...long blog for you tonight since I wasn't able to get on the computer last night.

Tenley - Yesterday she did a bottle feed with OT (occupational therapy) and she only had maybe 8CCs and then she just couldn't breathe anymore. ENT came by and took a sample of her nasal secretion to test for any viruses which may be causing the congestion. Test results today showed no viruses. ENT was suppose to come by today and do a scope of her nasal cavity however they didn't end up coming...maybe tomorrow. In the meantime, the poor girl is toughing it out with one of the most clogged noses her nurse today has ever come across. Her bottle feed with OT today went a bit better. Slow and steady is the name of her game...in 30 minutes she was able to drink 12CCs out of her full 42CC feed. Keep it up girl...baby steps!

Will - Yesterday was yet another milestone for the new mommy...she was the victim to one of her babies eating too much. Will was drinking from mommy and I guess ate too much so, as I'm sure you now, out it all came...all over his newly changed outfit and mommy. Awwww. They are not going to do the rice in his bottle feeds anymore, it doesn't really do anything. His eye exam yesterday showed improvement (he went from stage 2 back down to stage 1) so he doesn't have to have another one for 2 weeks. Even though his head ultrasound was unchanged, they will not be doing another one for 3 weeks. He is definitely allergic to the sticky material on the leads, but they can't think of any way around it. Everything they try to do ends up not making the leads connect properly. His other body rash comes and goes and is referred to as atopic eczema.

They both got examined by Developmental Therapy yesterday. Basically, they do a bunch of tests to determine the preemies adjusted age. The older they are, the closer to their true age they become. To put it in prospective, at 15 months old they will just be starting to catch up with their actual age...until then, they are considered a negative age. Tenley scored fairly high except for the feeding test (totally expected) and her Tone. This was odd because tone usually isn't a problem of hers...they think she was just upset because of not being able to breathe. They could definitely tell Will had Tone and neurological damage but he didn't score too badly considering. He scored higher than Tenley on being able to make noises (grunts and moans...which is apparently a good thing) and he was also receptive to his Mommy's voice and Daddy's soothing touch in between tests. He didn't respond well when they rang a bell or shook a rattle (he would wave his arms around, tremor, and not look in the direction of the sound), however when he heard mommy's voice he didn't tremor and turned his head and eyes to look right at her. They have another round of tests in 4 months to see their progress.