Friday, May 4, 2018

May 4, 2018

Physically, Will is doing amazingly well - his legs kick and bend while lying flat in bed as if nothing happened. After a good morning yesterday, Will woke up from his afternoon nap on an emotional low. I think the brevity of the road ahead hit him and he just wanted to sit up, walk and be in his own home. He also stopped the pain meds yesterday at 11 so some of his down mood could be related to that. But, the good news is that he was able to get off pain meds (still available orally if requested) and got disconnected from all things being sent to him intravenously. We rolled him onto his tummy for a bit yesterday but he was not a fan. He said he could feel "wires" in his back and got really scared. What he was likely feeling was the incision / stitches which are really small, but I'm sure the skin pulling is what he was referring to. Mom took a picture of it so he could see how small it was, but the sensation of discomfort did not settle well with him. His appetite was also a bit decreased yesterday afternoon but he hadn't had a #2 since being admitted on Tuesday.

Mom and I left at 6:30 (I needed a shower and a good night of sleep and Mommy needed to be home for Conner and Tenley) which meant Will had to sleep on his own for the first time. The nurse stayed with him until he finally fell asleep, but he sent us some sad text messages telling us how much he missed us before finally dozing off. Heartbreaking. On a more positive note, he did finally have a #2 after we left...the nurse said it was quite hefty :)

He woke up this morning in a good mood; afterall, today was the day he could finally sit up in bed and even try standing. This had been Will's motivation since Tuesday and the day had finally come. Mom made it to the hospital at 9:30 and was greeted to an upright in-bed Will. He then sat on his bed for about 20 minutes until he got tired and wanted to lay back down. Progress though....just what Will needed to reignite his motivation.



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