Thursday, June 27, 2013

June 27, 2013

CB huntin' gators?

William being downright badazz

Play time in Uncle Bruce's truck

Monday, June 17, 2013

June 17, 2013

William was home early Saturday evening. Tenley yelled "WILL! WILL!" and Conner was indifferent. He is in great spirits but still getting accustomed to being poked four times a day for blood sugar checks and insulin shots. Uncle J bought him enough toys that hopefully he doesn't think he is being bad. Will's appetite appears to have increased as he is still eating graham crackers, meatballs, and pepperoni. Keep it up, Will!!!

Friday, June 14, 2013

June 14, 2013

Tuesday, William had another round of botox treatments. This consists of shots on the right side of his body to help untense his muscles and encourage usage as opposed to favoring his left side. He woke up a bit grumpy Wednesday morning but had otherwise forgotten.

Yesterday morning Mommy and Daddy decided to test William's blood sugar. He had been waking up in the mornings soaked in pee and was complaining in the middle of the night of needing water and being thirsty. Their hunch to test his blood sugar paid off. His reading was 370...a normal child would be in the 60 - 80 range. They went to the doctor who then transferred him to Frederick Memorial. Later that evening, Frederick Memorial transferred him to Children's Pediatric Hospital in DC. He was in diabetic ketoacidosis. His lab work was not good and the doctors were shocked his numbers were only hitting in the low 400s.

During the ambulance ride to DC, William did not say much. He saw Daddy in the Honda behind him and many cars drove by, but he said nothing. For anyone who has been near William lately, if there is a car nearby, he will get excited and yell out the make and model. His silence during the drive over was definitely a sign they were headed to the right place at the right time.

By 8am this morning, he had stabilized. His afternoon labs were good so he was discharged from the ICU and got his own step down room around 3pm. His pre-dinner reading was 170. I personally saw his normal loving, boyish self come out later in the evening. His appetite had returned as demonstrated by his attack on the turkey pepperoni and graham crackers then downing of an apple juice. He was up well passed his bedtime but he finally felt good for the first time in who knows how long. William will forever have type 1 diabetes. The good news is it was caught early. It could likely be another symptom of an auto immune disease (just like his alopecia). Luckily, he has his Daddy who will forever be his role model on how to live day to day. He might not like the finger pokes or the needles shooting insulin into his body, but he will soon learn its just part of his normal routine. He is here and he is one of the happiest, sweetest, positive attitude children I have ever met. Those qualities alone will get him far in life.

We are optimistic he will be discharged and coming home tomorrow evening (as long as his labs and blood sugar stay where they are now). I will post an update as soon as I hear something.